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God is good.
Well I could use some help right now so I thought I would revive this thread. Some of you may or may not know that I have been fighting stage IV cancer since August of 2017. Thought I might have a chance middle of 2018 but January 2019 it had spread to lungs and bone. So in 2019 they tried immunotherapy which didn’t work and then pill form Chemo which didn’t work either. So in January of 2020 they put me back on harsh Carbo Chemo that at least knocked it back in early 2018. Well my PET scan on April 30th showed that the harsh Chemo wasn’t working anymore either. Due to the Covid restrictions I had it local instead of at Mayo. The local Oncologist had a conference call to review the findings and basically recommended that I contact hospice and start that process. Gave me 6 months. First time my wife broke down. I contacted my Oncologist at Mayo and she scheduled a meeting with a Phase 1 trial Doc there and her. So we met with them and now basically waiting to see if I can get into a trial. Tic toc. I am also trying to get into Moffitt Cancer phase 1 trials in Tampa. But you have to be a patient with them first and then go through screening. So going through that process now. At least they have a trial specific to my head and neck cancer that has metastasized. Plus it would locate my wife close to the kids and her parents. So we will see. Tex can probably relate to this but in Mid 2019 Mayo sent my cancer cells to a research facility to get a DNA match to possible treatment. $7000.00 for that. They did provide a match. Vorinostat/Zolinza. So the oncologist prescribed it along with my Chemo. Sure enough the health insurance turned it down because it wasn’t approved specifically for my cancer. It was FDA approved just not for mine. So I thought I will just pay out of pocket. Life saving potential right? Well it would cost $13,000.00 per month. So I made too much money to get assistance from Merck and I can’t swing $13k a month so no bueno. So unless Tex has some industry secrets how to get that it is wait and see. So if you guys could add me and my family to your prayers I would greatly appreciate it. Sent from my iPad using Tapatalk
I just don't want to wind up missing a digit or limb. I can sometimes get in a hurry to get results.
I remember it well. Concentrate concentrate On not saying anything. LolPrayers sent. EnjoySent from my iPhone using Tapatalk